HELP URGENT - STOPPING EATING AND DRINKING How Long ?

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Susan Caswell

Veteran
Feb 25, 2019
196
350
Please someone can you help I cant this deafening jet plane roaring hammering drilling Tinnitus plus hyperacusis so extreme everything is deafening its all so loud my ears are vibrating anxiety crippling 2 years 8 months non stop. I have to end this I cant take this any longer can only think stop eating and drinking how long will it take would it just be days I want my life but not with this tinnitus like other people get ok and live ok with I could do but not this its on every nerve I have its made me so ill and I was healthy fit happy calm with so much life to still live ive tried to live with this I cant I now cant eat rest watch TV read sleep go out live its suffering like I never knew possible please somehow help me I am being tortured to death by noise its horrific no quiet no peace no rest ive recovered from cancer a back op all sorts don't even have cause came on from nowhere never thought I wouldn't be living happy doing all I planned calm please please someone help me go i cant stand this I cant hear anything at all but this its inhuman left like this x
 
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Lostnotfound

-
Feb 23, 2020
351
669
My story on this is that I overdosed on ambien and mixed it with alcohol. I went unconscious and vomited whilst I was unconscious. I woke up 3 days later but was unable to move for 2 days so that takes us to 5 days with no food or fluids. I was pretty pissed that I had been sick and woken up so I decided I would do the VSED as I had no more medication in the house. I continued for a further 9 days with no food or fluid. I stopped all toilet needs as my system had nothing to put out. My mouth was like shit and at times I thought my tongue was cracking it was so dry but I read that every drip prolongs the time so I done nothing. During this time I stayed in bed, therefore exerting no energy which is according to the medical team what saved me! (Oh great!). When I was ’found’ I was severely dehydrated, my diabetes had kicked in to kinetosis or whatever they call it and my blood pressure was desperately desperately high however I personally felt fine. A lot of it depends on how much fat is stored on your body, other health conditions and how active you are. I wouldn’t recommend it - long and drawn out and as I understand it, it does become painful but after 14 days I was no where near that stage.
 
drake4871

drake4871

The restless
Sep 10, 2019
170
195
We don't know your body weight, body fat percentage, muscle mass, or daily calorie intake. I could estimate for you if you'd like but there are definitely better methods with better success rates. I'm sorry that you have to deal with tinnitus, and I hope there's something that can help you feel better
 
GoodPersonEffed

GoodPersonEffed

Pensively Prolific
Jan 11, 2020
3,356
6,517
I would suggest using the site search as well as internet search for VSED and similar terms like starvation. Without being in a method-supporting environment like a hospice or nursing home, it is nearly impossible to do alone.
 
fightingsioux

fightingsioux

Specialist
Oct 22, 2019
368
1,237
You've posted essentially this same frantic message almost 100 times for over a year.

Hundreds of people have replied, many with good, practical, real suggestions.

You ignore them, then post the same message.

Not sure what's really going on.
 
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M

Mr. ‘K so?

Veteran
Mar 4, 2020
103
90
You can go like 5 days(?) without water outside of the extremem temperatures like deserts and tropics. Food is a lot worse, people have gone on hunger strikes for 40+ days, so let’s say realistically two-three weeks depending on how meaty you are. It’s not easy and you’ll probably cave in unless you’re stranded in the wilderness
 
AlreadyGone

AlreadyGone

Taking it day by day
Jan 11, 2020
589
838
I don't know. Maybe a Google search can help.
 
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Susan Caswell

Veteran
Feb 25, 2019
196
350
You've posted essentially this same frantic message almost 100 times for over a year.

Hundreds of people have replied, many with good, practical, real suggestions.

You ignore them, then post the same message.

Not sure what's really going on.
I know I understand ive tried to stand this live with it tried and tried and I do want to go just don't know how keep hoping the tinnitus will stop but don't think it will or can now im so very sorry to go on like I have I was never like this and I haven't done 100s of posts x
 
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disabledandhopeless

disabledandhopeless

Wise
Mar 2, 2020
218
473
If you’re thinking of ctb by starvation/dehydration I do not recommend because it’s going to be painful and a long wait before it actually takes your life... and gradually survival instincts will take over because you’ll feel incredibly hungry/thirsty and you might change your mind.
 
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issyishere

issyishere

Goodnight and always remember that’s life
Nov 5, 2019
260
770
not to discourage you or anything, but starvation and thirst is a really hard method to do on your own. Is there any other method that could be feasible? It sounds like you’re in alot of pain. :aw:
 
Nem

Nem

Drs suck mega ass!
Sep 3, 2018
1,474
4,135
Very sorry to hear this, tinnitus sucks like a motherfuckingbitch. I deal with it too and think of death constantly, unfortunately I don’t know how long stopping eating and drinking can take to kill you
Peace/hugs❤
 
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medicore

medicore

The man himself
Nov 1, 2019
62
105
It sounds like you don't really wanna die per se, but you're living through such an amount of torture that you wish you were dead. Before considering suicide, consider medical help for your condition (specifically the hyperacusis since it sounds like it's the heart of the issue here).

If you've exhausted all your options there, consider deafening yourself on purpose, possibly with the help of a friend (ie fucking up your ears). It's better than fucking up your whole life.

Should you decide to not go with those options, consider full suspension hanging. Drop a slipknot over a beam and tie it to an anchor, then put your head in it while elevated and jump while kicking the elevated surface away. It's 100% foolproof, given you don't get found. It can be dangerous if so, and there are ways to make this more comfortable and safe for you, but that's the general idea.

You should also consider Sodium Nitrite as a way to go. Quite peaceful. Shotguns are also pretty foolproof, and given proper placement, are actually 100% foolproof even if you are found and taken to a hospital immediately.

I know it must be hard living like this, but please stay calm and try to consider your options before you rush into something crazy. That's what it'll take to escape the nightmare.
 
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Whale_bones

Whale_bones

Stars always seem to fade
Feb 12, 2020
36
78
I spent a long time reading your past posts and as another poster already stated in this thread, you’ve posted a nearly identical message dozens of times. You’ve been posting the same question repeatedly for a year now. I don’t say that to invalidate your pain; I fully believe you’re suffering, and my heart goes out to you. But it is clear that you don’t actually want answers to the question of starvation and dehydration, because that question has been specifically asked by you so many times, and people have spent time giving you thorough answers. It’s now a waste of time for anyone who answers this question for you yet again.

I know you have exhausted every medical treatment you know of for the auditory issues. The one thing I haven’t seen is if you’ve gotten any mental health treatment from a qualified professional. I’m not saying it will cure your tinnitus (it won’t) but with the intense amount of suffering you’re going through and have been going through for over a year, you’ve got nothing to lose by trying therapy. Look for a licensed mental health professional, they are bound by law to keep your information private. There’s a chance that counseling could help you sort out your thoughts and let you figure out your next step, whatever that may be.
 
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Susan Caswell

Veteran
Feb 25, 2019
196
350
It sounds like you don't really wanna die per se, but you're living through such an amount of torture that you wish you were dead. Before considering suicide, consider medical help for your condition (specifically the hyperacusis since it sounds like it's the heart of the issue here).

If you've exhausted all your options there, consider deafening yourself on purpose, possibly with the help of a friend (ie fucking up your ears). It's better than fucking up your whole life.

Should you decide to not go with those options, consider full suspension hanging. Drop a slipknot over a beam and tie it to an anchor, then put your head in it while elevated and jump while kicking the elevated surface away. It's 100% foolproof, given you don't get found. It can be dangerous if so, and there are ways to make this more comfortable and safe for you, but that's the general idea.

You should also consider Sodium Nitrite as a way to go. Quite peaceful. Shotguns are also pretty foolproof, and given proper placement, are actually 100% foolproof even if you are found and taken to a hospital immediately.

I know it must be hard living like this, but please stay calm and try to consider your options before you rush into something crazy. That's what it'll take to escape the nightmare.
I think I am truly at the end of what I can stand and tried everything possible to get this stopped or down I don't think this is just me I don't think anyone could live with noise this loud in your own ears the panic and anxiety is terrible just getting too weak and don't know what to try but I do want this to end I couldn't take noise like this rest of my life wish there was one fatal pill take it gone tragic I had so much living to do with such happy plans don't even know what set this off from nowhere if I made myself deaf youd still have the tinnitus apparently just wish never come I was fine really well happy calm living a wonderful life out every day picture of health now don't look like me feel horrific but its the dementing nature deafening noise in your own ears day after day wish id would stop think its that bad now it cant just had enough I never knew suicide was so hard its so hard if I only knew how I just want quiet peace calm never thought anything like this could happen to me survived cancer chemo back op breast op so much but always got well could eat well rest good sleep this is killing me I feel ive died and gone to hell its such suffering thank you for your response x
I spent a long time reading your past posts and as another poster already stated in this thread, you’ve posted a nearly identical message dozens of times. You’ve been posting the same question repeatedly for a year now. I don’t say that to invalidate your pain; I fully believe you’re suffering, and my heart goes out to you. But it is clear that you don’t actually want answers to the question of starvation and dehydration, because that question has been specifically asked by you so many times, and people have spent time giving you thorough answers. It’s now a waste of time for anyone who answers this question for you yet again.

I know you have exhausted every medical treatment you know of for the auditory issues. The one thing I haven’t seen is if you’ve gotten any mental health treatment from a qualified professional. I’m not saying it will cure your tinnitus (it won’t) but with the intense amount of suffering you’re going through and have been going through for over a year, you’ve got nothing to lose by trying therapy. Look for a licensed mental health professional, they are bound by law to keep your information private. There’s a chance that counseling could help you sort out your thoughts and let you figure out your next step, whatever that may be.
Thank you I understand and realise I post same just in such desperation I think its for someone to stop this for me and yet know they cant just keep hoping someone can help me never thought it would get to this I coped with it for a year but it was nothing like it is now. Ive had so much help CBT Councelling still have therapy twice a week but im still left with the tinnitus I just cant stand its on every nerve I have day after day already been 2 years 8 months pounding my ears I can feel its horrific its taken huge toll on my health and life I could have coped with anything at all but this I don't think anyone could stand this I cant get well and cant stay like this its on every nerve I have it is dementing no rest from it cant get away from it I wish with everything I have it would stop go down tinnitus isn't like this that you just cant stand its as loud as workmans drill how is it even possible for ears to amplify like this my partner has tinnitus 3 friends do all cope never bothers them all do all they ever did and more me so ill its has to be the severity volume pitch how do I live with deafening jet plane roaring its hammering hissing its horrific torture they tortured people with noise it sent then insane I want out before im insane I cant bare that too just cant for the life of me understand it what could have set this off I went to bed fine 25 July 2017 woke up deafening tinnitus no cause no reason just from nowhere I was so healthy fit out every day ate well lived well just all was good really good please someone stop this will this ever let up I hadn't banked on the anxiety or the toxic meds none have helped all made this worse and worse wish someone could help me out of this torture im sorry going on and on just feel in such despair x
 
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Whale_bones

Whale_bones

Stars always seem to fade
Feb 12, 2020
36
78
Ive had so much help CBT Councelling still have therapy twice a week but im still left with the tinnitus
I’m glad to hear you’ve tried CBT and that you’re currently in counseling, at least you have someone to talk to. I know you are suffering badly, but unfortunately suicide is not easy like it looks in the movies. The actual act of suicide takes a huge amount of courage.

I actually have chronic pain and am disabled. I used to be a normal person and now I’m nearly homebound. I will never live an active, good life again, so I had to decide: either I die right now or I accept what my life is, atleast temporarily. It seems you’re at that point too. Option one is you choose to die, which will require you to actually take action to make that happen, and could well be a very stressful and unpleasant death.

Option number two, you decide not to die for now, and you accept absolutely everything about the way you have to live now. You accept every restriction the tinnitus puts on your life and instead of fighting it, live with whatever small abilities you have, even if that’s just the ability to lay in bed and type on the internet. Don’t feel guilty for any symptoms you have and do whatever you need to to get through each day.

For me, the acceptance is the only way I don’t feel an urgent need to die. When I was fighting it I was purely panicked and constantly thinking “I can’t live like this” but the thing is, there comes a point where you ARE living with it and you, Susan, have lived with it for 2 years 8 months now. That means you are a hell of a lot stronger than you know and maybe you don’t need to die after all. Only you know the answer of what is right for you, but there’s no easy option. Acceptance is hard and suicide is absolutely hard, it’s a total myth that it’s the easy way out.
 
Quittingisoverrated

Quittingisoverrated

Tired
Mar 11, 2020
52
120
Maybe tapping back of head can lead to temporary relief. Might be worth looking into.
 
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Susan Caswell

Veteran
Feb 25, 2019
196
350
I’m glad to hear you’ve tried CBT and that you’re currently in counseling, at least you have someone to talk to. I know you are suffering badly, but unfortunately suicide is not easy like it looks in the movies. The actual act of suicide takes a huge amount of courage.

I actually have chronic pain and am disabled. I used to be a normal person and now I’m nearly homebound. I will never live an active, good life again, so I had to decide: either I die right now or I accept what my life is, atleast temporarily. It seems you’re at that point too. Option one is you choose to die, which will require you to actually take action to make that happen, and could well be a very stressful and unpleasant death.

Option number two, you decide not to die for now, and you accept absolutely everything about the way you have to live now. You accept every restriction the tinnitus puts on your life and instead of fighting it, live with whatever small abilities you have, even if that’s just the ability to lay in bed and type on the internet. Don’t feel guilty for any symptoms you have and do whatever you need to to get through each day.

For me, the acceptance is the only way I don’t feel an urgent need to die. When I was fighting it I was purely panicked and constantly thinking “I can’t live like this” but the thing is, there comes a point where you ARE living with it and you, Susan, have lived with it for 2 years 8 months now. That means you are a hell of a lot stronger than you know and maybe you don’t need to die after all. Only you know the answer of what is right for you, but there’s no easy option. Acceptance is hard and suicide is absolutely hard, it’s a total myth that it’s the easy way out.
Thank you so much. It wasn't like this at the start though it was loud but I could stand it it was one ear one noise I didn't hear it all day and TV or Music masked it I still kept myself nice clean nice clothes on etc I could still eat sleep with sleeping pills couldn't do all I did but somethings. It changed when the hyperacusis came now every noise is deafening day after day never any rest never feel calm or at peace. Ive had high pitch hissing for years still do never hear it couldn't it just have stayed at that all would be good id be just living as I was normal heathy happy all good never thought anything like this could happen to anyone its cruel. I can stand a lot and have but this the hammering knocks me so sick don't know how my ears can even make noise like this its horrendous I just can tolerate it on any level I hated noise but this you just cant get away from I would never have considered suicide in my life and your right its not easy I used to think it was easy way out and couldn't understand anyone taking that route but sadly I get it 100% now. I just could have taken and lived with anything else any other condition as ling as I didn't have dementing noise 24/7 I can find no one world wide with tinnitus like this everyone manages somehow with it I just wish it was level I could stand its destroying my physical health but mental now too and im damned if I will end up insane would rather be gone its how to go that's harder than I knew possible cant believe its happened to me or why no reason nothing from perfect hearing to deafening tinnitus. I had so many lovely hopes dreams and plans juts wanted normal calm rest of my life doing all I loved. I worked so hard for 38 years looked after everyone and myself really well I ate healthy lived healthy happy calm my life was wonderful a loving partner of 40 years who also has tinnitus but never hears it does all he ever did same with friends never bothers them they all can live happy I think it has got to be about volume pitch severity if I could stand this I would be but every minute of every day and night a human being cant live like this we need quiet peace calm be happy do things live life I am so ill in myself and I was really fit and well walked miles dance class cycled how I hate this but terrified im stuck like this just cant even get it down if only it would go back to how it was a level I could at least live with im squirming wincing being sick its horrific level now. Wish someone could get this down ive tried every medical route possible only answer seems to be live with it and I cant or be this ill in terrible mess with sleeping pills anxiety meds hated all medication I think the meds have made me really ill on top of this and made it all extreme. I am so sick of it so sick of feeling so ill so tormented no one could stand this don't think its just me . I so wish it was anything but this survived cancer want to die from tinnitus. I would wish this on no one.
I am so very sorry to hear of your suffering its not right I wish I could fix you are you in the UK ? How have we all arrived on a site like this I was out every day busy happy calm soul please make it stop I could rip my head off x
Please can anyone suggest anything that might help get this down even very desperate vert tired very tormented out of my mind they tortured people with noise it drove them insane im damned if I will end up insane its inhuman left like this I don't even know cause from perfect ears to this no sign no warning it wasn't hearing loss or loud noise or ear infection no reason I was just an ordinary person living happy calm life this is horrific no escape no quiet tinnitus I could stand ok but when you cant this is all I can hear hammering through me its soul destroying please can anyone help me just cant go on like this x
 
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Suez

Suez

Wise
Feb 27, 2020
256
342
Please someone can you help I cant this deafening jet plane roaring hammering drilling Tinnitus plus hyperacusis so extreme everything is deafening its all so loud my ears are vibrating anxiety crippling 2 years 8 months non stop. I have to end this I cant take this any longer can only think stop eating and drinking how long will it take would it just be days I want my life but not with this tinnitus like other people get ok and live ok with I could do but not this its on every nerve I have its made me so ill and I was healthy fit happy calm with so much life to still live ive tried to live with this I cant I now cant eat rest watch TV read sleep go out live its suffering like I never knew possible please somehow help me I am being tortured to death by noise its horrific no quiet no peace no rest ive recovered from cancer a back op all sorts don't even have cause came on from nowhere never thought I wouldn't be living happy doing all I planned calm please please someone help me go i cant stand this I cant hear anything at all but this its inhuman left like this x
Please tell me your getting medical treatment for your tinnitus and hyperacusis? A good friend of mine has both. She was a mess for a long time, the noise was slowly driving her mad, she said. I could see it happening to her in front of my eyes,so I have a bit of an idea as to what you are going through. My friend was lucky enough to find a good specialist that was able to put her onto the right audiologists and psychiatrists to help her. She has since been fitted with a sound therapy device, which has really changed things for her. There are apparently non wearable devices, but these didnt work for her. They can be used with or without hearing aids. Have you investigated these? If not please please do so. It may just be what you need, who knows, but it is most certainly worth a try. PLease in the mean time , talk to people that care for you. Wanting to kill yourself because of a medical condition that you may be able to get treatment for isnt right. I do understand to some degree the level of pain and discomfort you are in, i have watched my friend scream out in pain many times, and there were many times where she was almost driven to want to kill herself too. So please, see someone. If you havent investigated things like sound devices before, then please do so.
 
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Susan Caswell

Veteran
Feb 25, 2019
196
350
Please tell me your getting medical treatment for your tinnitus and hyperacusis? A good friend of mine has both. She was a mess for a long time, the noise was slowly driving her mad, she said. I could see it happening to her in front of my eyes,so I have a bit of an idea as to what you are going through. My friend was lucky enough to find a good specialist that was able to put her onto the right audiologists and psychiatrists to help her. She has since been fitted with a sound therapy device, which has really changed things for her. There are apparently non wearable devices, but these didnt work for her. They can be used with or without hearing aids. Have you investigated these? If not please please do so. It may just be what you need, who knows, but it is most certainly worth a try. PLease in the mean time , talk to people that care for you. Wanting to kill yourself because of a medical condition that you may be able to get treatment for isnt right. I do understand to some degree the level of pain and discomfort you are in, i have watched my friend scream out in pain many times, and there were many times where she was almost driven to want to kill herself too. So please, see someone. If you havent investigated things like sound devices before, then please do so.
Thank you for your message im so sorry to hear about your friend but glad she has survived. Ive tried everything possible 4 consultants 3 tinnitus clinics and every alternative therapy known to man sound therapy and noise generators just haven't helped had far too many meds all of them just made this extreme theres noise and noise this is so loud I feel faint sick I cant stay like this ive tired and tried if I could stand it eat rest sleep do things I cant even get washed dressed cant eat now im skin and bone and I didn't have it to loose lost nearly all my hair with the anxiety. I cant believe its even happened I was so very healthy and well living life was a coper this is destroying me I have to end this its like being tortured out of my mind and I can take a lot but I don't think anyone could take this just wish it would stop and let me get well don't even know why temporary mild moderate fixable but forever I couldn't cant already been 2 years 9 months ive tried to cope but deafening roaring day after day no inner calm the panic is terrible I could have taken anything at all but this anything I have ive recovered from cancer back op breast op grief but coped always I loved my life this is has destroyed me if only it would go back to how it was when it started it was loud but never thought it could get any louder the hyperacusis is horrible everything is amplified I cat eat or rest or sleep or watch TV no housework im so weak not eating I loved my food im in terrible state don't even know why there must be an answer to this I can find no one world wide like this there must be something im terrified to die or how even I cant imaging not being here but cant imagine staying like this either just want my life back how I was thought I had good 20 plus happy years ahead of me healthy doing all I planned its cruel but its suffering like I never knew possible been good all my life wish id go to sleep never wake up I thought this would get better stop go down a human being cant live with noise 24/7 you cant get away from its dementing I will end up insane would rather be gone I can only think jump im frightened don't die and crippled x what brings you here where are you in the world x
 
Suez

Suez

Wise
Feb 27, 2020
256
342
Thank you for your message im so sorry to hear about your friend but glad she has survived. Ive tried everything possible 4 consultants 3 tinnitus clinics and every alternative therapy known to man sound therapy and noise generators just haven't helped had far too many meds all of them just made this extreme theres noise and noise this is so loud I feel faint sick I cant stay like this ive tired and tried if I could stand it eat rest sleep do things I cant even get washed dressed cant eat now im skin and bone and I didn't have it to loose lost nearly all my hair with the anxiety. I cant believe its even happened I was so very healthy and well living life was a coper this is destroying me I have to end this its like being tortured out of my mind and I can take a lot but I don't think anyone could take this just wish it would stop and let me get well don't even know why temporary mild moderate fixable but forever I couldn't cant already been 2 years 9 months ive tried to cope but deafening roaring day after day no inner calm the panic is terrible I could have taken anything at all but this anything I have ive recovered from cancer back op breast op grief but coped always I loved my life this is has destroyed me if only it would go back to how it was when it started it was loud but never thought it could get any louder the hyperacusis is horrible everything is amplified I cat eat or rest or sleep or watch TV no housework im so weak not eating I loved my food im in terrible state don't even know why there must be an answer to this I can find no one world wide like this there must be something im terrified to die or how even I cant imaging not being here but cant imagine staying like this either just want my life back how I was thought I had good 20 plus happy years ahead of me healthy doing all I planned its cruel but its suffering like I never knew possible been good all my life wish id go to sleep never wake up I thought this would get better stop go down a human being cant live with noise 24/7 you cant get away from its dementing I will end up insane would rather be gone I can only think jump im frightened don't die and crippled x what brings you here where are you in the world x
I am so sorry for what you are going thru Susan. Its not fair. You shouldnt have to go thru this type of pain. I assume you have researched every possible treatment out there? I just cant help think how wrong it is to see you here, when its this awful condition which has bought you to this website. Most people are here for very different reasons. To be here for something which you would think should be treatable, is just not right. Is there no kind of medication which eases the symptoms? Gosh how do you block out extreme noise coming from inside your head? Im actually a scientist, so my brain is going crazy trying to think about how you could get some relief from this or other treatments out there which havent been looked at?? Im sure youve already done this, but im going to do some research myself. Who knows, cant hurt eh? Hang in there Susan.
Hey Susan, are you in the US? Just wondering cos the Mayo Clinic, is one such place that does various trials. On their website there is a trial., the details are.... The purpose of this study is to evaluate the feasibility of implementing a novel Tinnitus Implant System for suppression of chronic intractable tinnitus. They ask that you contact Nicole Tombers at [email protected] Perhaps a study is the way to go, as clinics are often developing new treatments for various physical problems, all the time. Wat do you think?
Do you know what caused your tinnitus ? So from my reading it seems, therein lies the answer. Treatment depends on what caused the tinnitus in the first place. There seems to be three schools of thought. 1) Caused by hearing loss, 2) caused by a side effect of taking a particular medication or 3)Neurological or structural abnormality. So if its caused by hearing loss, it seems hearing aids are used to reduce symptoms by improving hearing. If its due to a medication then obviously its about reducing dose or finding an alternative. If it is neurological or structural then it seems surgical interventions are used. If your more into alternative therapy, there was something i read about a person with tinnitus who practices meditation, only instead of using meditation to help him by focusing his attention onto a single point of awareness, like breathing, he turned it on its head. Instead he stopped fighting to ignore his tinnitus, and focused on the ringing instead. When he focussed on being mindfully aware of the ringing (or whatever the noise is for you), it significantly reduced the noise. With continued practice he was able to get rid of the noise all together.
 
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Susan Caswell

Veteran
Feb 25, 2019
196
350
I am so sorry for what you are going thru Susan. Its not fair. You shouldnt have to go thru this type of pain. I assume you have researched every possible treatment out there? I just cant help think how wrong it is to see you here, when its this awful condition which has bought you to this website. Most people are here for very different reasons. To be here for something which you would think should be treatable, is just not right. Is there no kind of medication which eases the symptoms? Gosh how do you block out extreme noise coming from inside your head? Im actually a scientist, so my brain is going crazy trying to think about how you could get some relief from this or other treatments out there which havent been looked at?? Im sure youve already done this, but im going to do some research myself. Who knows, cant hurt eh? Hang in there Susan.
Hey Susan, are you in the US? Just wondering cos the Mayo Clinic, is one such place that does various trials. On their website there is a trial., the details are.... The purpose of this study is to evaluate the feasibility of implementing a novel Tinnitus Implant System for suppression of chronic intractable tinnitus. They ask that you contact Nicole Tombers at [email protected] Perhaps a study is the way to go, as clinics are often developing new treatments for various physical problems, all the time. Wat do you think?
Do you know what caused your tinnitus ? So from my reading it seems, therein lies the answer. Treatment depends on what caused the tinnitus in the first place. There seems to be three schools of thought. 1) Caused by hearing loss, 2) caused by a side effect of taking a particular medication or 3)Neurological or structural abnormality. So if its caused by hearing loss, it seems hearing aids are used to reduce symptoms by improving hearing. If its due to a medication then obviously its about reducing dose or finding an alternative. If it is neurological or structural then it seems surgical interventions are used. If your more into alternative therapy, there was something i read about a person with tinnitus who practices meditation, only instead of using meditation to help him by focusing his attention onto a single point of awareness, like breathing, he turned it on its head. Instead he stopped fighting to ignore his tinnitus, and focused on the ringing instead. When he focussed on being mindfully aware of the ringing (or whatever the noise is for you), it significantly reduced the noise. With continued practice he was able to get rid of the noise all together.
Thank you so much for trying to help me.. It isn't right ive had so much medically and recovered I can stand operations pain etc but this that you cant get away from tinnitus is bad enough but hyperacusis this bad when every single noise is also deafening even a tap running my own voice my partners voice eating I cant even stand the gas hob. I just don't know cause it came on from nowhere I went to bed perfect ears great woke up just few hours later deafening noise it was loud but one ear one noise I coped but now just horrific 4 noises both ears all deafening I can only think all the meds for anxiety has caused the hyperacusis I didn't have that until started sleeping pills I know why the anxiety its living like this its torture that you just cant get away from but pounding so loud I can feel it pounding into my feet its driving me insane no one could live like this if it was temporary mild ok would just stop. I know it wasn't hearing loss or ear infection never had ear problem in my life my ears were just great I can only think long term meds for Blood Pressure or HRT or Bone Treatment Thyroid I just don't know doctors just wont have it that's meds could be cause and ive been on my long term meds 20 years so why now would have thought it would have come on before this. I worked so very hard for 38 years was the most capable independent happy person with a lovely life really wonderful I have a wonderful partner of 40 years he has tinnitus 3 friends do never bothers any of them he never hears it ive had high pitch hissing for years and never bothered me either still do it fades into the background but deafening jet plane roaring the hammering sound is hideous but also like workmans pneumatic drill that loud if this had been for a few minutes it would have been too long its cruel. I had very busy life loved normal things so much on with good friends loved eating out walking cycling dance class we were boarders for Guide Dogs for 10 years I have everything I could possible want our home lovely car nice clothes jewellery partner friends enough money I had such hopes dreams and plans all was so good I was calm always happy soul. I keep thinking this cant be happening that I just cant be this unlucky they only gave me 2 months to live with my cancer and that was 40 years ago knew how lucky I was. This is the worst thing ive ever had and my cancer was rare and difficult to treat but I was lucky got to the Royal Marsden Hospital in London im in the UK. I want my life but I cant live with this ive tried and tried but length of time and relentless noise day after day you cant get away from its soul destroying and made me so ill I look and feel horrific the anxiety so bad ive lost most of my lovely thick shiny hair I cant eat now ive lost over 2 stone and didn't have it to loose. I keep thinking surley it will stop surley I cant be this unlucky but now 2 years 9 months and so very much worse than the start i cant go on like this im surprised ive not had heart attach with this much anxiety. I don't know how my partner would cope we have had the most wonderful relationship but ive got to end this before I cant ive even applied for Euthanasia in Switzerland cant even get there and no one will take me anyway no one who loves me anyway and you have to be identified after. I can only think jump ive been to a place 3 times come home terrified I don't die and left crippled and still deafening tinnitus and wouldn't even be able to live at home. I keep hoping I die in bed keep thinking just stop eating and drinking I barely eat now just cant my tummy heaves and churns. What a huge mess I never thought I could be in this state just any other condition anything don't think anyone can imagine it even they all think I can ignore it and live my life if only I feel in such panic terrified to live terrified to die trapped in this horrific nightmare there must be an answer if only I could get it down and the hyperacusis to go wish someone could help me end this wish there was one fatal pill take it gone I thought there was not like the movies is it I never knew I use to think suicide was selfish I don't now thought easy way out its not its hardest thing takes nerves of steel I can stand a lot but not this my ears feel full pressure pain cant hear anything everything is hammering sound and so distorted with the volume I dont even know how one little pair of ears can make noise close to this something is so wrong why me this now when all was so great if id got good 20 years for us im only 63m 64 next week I was so fit we have always eating well and healthy lived well loved each other never a crossed word ever I have so much to be thankful for but so angry with my stupid body ears for this coming its ruined everything and totally destroyed me fought to keep well and healthy I don't even know how or why I rabbit on like this I never touched the computer ever was too busy you wold think with noise like this hammering me I couldn't write all this. There must be an answer this cant be my fate I don't deserve this no one does if I could do things I cant even get bathed or hair washed or watch TV I use to go to bed every night read for hours then lovely sleep i cant even rest or calm down just pray sleeping pill works been on them far too long please someone make this stop I could live rest of my life like this had enough now last few weeks even just got too much i hated noise but this is ridiculous can you help me in anyway where are you are you in the UK are you female I must be the only person whos posted in my real name stupid xx
 
GoodPersonEffed

GoodPersonEffed

Pensively Prolific
Jan 11, 2020
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6,517
can you help me in anyway

What does help look like to you? What could someone here directly do for you?

Can you answer the question directly, in just a few sentences, without a massive wall of text with no punctuation, and not veer off into tangents?
 
Suez

Suez

Wise
Feb 27, 2020
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Thank you so much for trying to help me.. It isn't right ive had so much medically and recovered I can stand operations pain etc but this that you cant get away from tinnitus is bad enough but hyperacusis this bad when every single noise is also deafening even a tap running my own voice my partners voice eating I cant even stand the gas hob. I just don't know cause it came on from nowhere I went to bed perfect ears great woke up just few hours later deafening noise it was loud but one ear one noise I coped but now just horrific 4 noises both ears all deafening I can only think all the meds for anxiety has caused the hyperacusis I didn't have that until started sleeping pills I know why the anxiety its living like this its torture that you just cant get away from but pounding so loud I can feel it pounding into my feet its driving me insane no one could live like this if it was temporary mild ok would just stop. I know it wasn't hearing loss or ear infection never had ear problem in my life my ears were just great I can only think long term meds for Blood Pressure or HRT or Bone Treatment Thyroid I just don't know doctors just wont have it that's meds could be cause and ive been on my long term meds 20 years so why now would have thought it would have come on before this. I worked so very hard for 38 years was the most capable independent happy person with a lovely life really wonderful I have a wonderful partner of 40 years he has tinnitus 3 friends do never bothers any of them he never hears it ive had high pitch hissing for years and never bothered me either still do it fades into the background but deafening jet plane roaring the hammering sound is hideous but also like workmans pneumatic drill that loud if this had been for a few minutes it would have been too long its cruel. I had very busy life loved normal things so much on with good friends loved eating out walking cycling dance class we were boarders for Guide Dogs for 10 years I have everything I could possible want our home lovely car nice clothes jewellery partner friends enough money I had such hopes dreams and plans all was so good I was calm always happy soul. I keep thinking this cant be happening that I just cant be this unlucky they only gave me 2 months to live with my cancer and that was 40 years ago knew how lucky I was. This is the worst thing ive ever had and my cancer was rare and difficult to treat but I was lucky got to the Royal Marsden Hospital in London im in the UK. I want my life but I cant live with this ive tried and tried but length of time and relentless noise day after day you cant get away from its soul destroying and made me so ill I look and feel horrific the anxiety so bad ive lost most of my lovely thick shiny hair I cant eat now ive lost over 2 stone and didn't have it to loose. I keep thinking surley it will stop surley I cant be this unlucky but now 2 years 9 months and so very much worse than the start i cant go on like this im surprised ive not had heart attach with this much anxiety. I don't know how my partner would cope we have had the most wonderful relationship but ive got to end this before I cant ive even applied for Euthanasia in Switzerland cant even get there and no one will take me anyway no one who loves me anyway and you have to be identified after. I can only think jump ive been to a place 3 times come home terrified I don't die and left crippled and still deafening tinnitus and wouldn't even be able to live at home. I keep hoping I die in bed keep thinking just stop eating and drinking I barely eat now just cant my tummy heaves and churns. What a huge mess I never thought I could be in this state just any other condition anything don't think anyone can imagine it even they all think I can ignore it and live my life if only I feel in such panic terrified to live terrified to die trapped in this horrific nightmare there must be an answer if only I could get it down and the hyperacusis to go wish someone could help me end this wish there was one fatal pill take it gone I thought there was not like the movies is it I never knew I use to think suicide was selfish I don't now thought easy way out its not its hardest thing takes nerves of steel I can stand a lot but not this my ears feel full pressure pain cant hear anything everything is hammering sound and so distorted with the volume I dont even know how one little pair of ears can make noise close to this something is so wrong why me this now when all was so great if id got good 20 years for us im only 63m 64 next week I was so fit we have always eating well and healthy lived well loved each other never a crossed word ever I have so much to be thankful for but so angry with my stupid body ears for this coming its ruined everything and totally destroyed me fought to keep well and healthy I don't even know how or why I rabbit on like this I never touched the computer ever was too busy you wold think with noise like this hammering me I couldn't write all this. There must be an answer this cant be my fate I don't deserve this no one does if I could do things I cant even get bathed or hair washed or watch TV I use to go to bed every night read for hours then lovely sleep i cant even rest or calm down just pray sleeping pill works been on them far too long please someone make this stop I could live rest of my life like this had enough now last few weeks even just got too much i hated noise but this is ridiculous can you help me in anyway where are you are you in the UK are you female I must be the only person whos posted in my real name stupid xx
Hey Susan, i really feel for you. I cant imagine what it must be like to have that level of noise in your ears every second of every day and no let up. Youve obviously seen Drs over the years and i see youve tried various different treatments but it doesnt sound like anyone has ever fitted you with the specific hearing aids ive read about that they use for tinitus? You also ever mentioned whether your Drs had suggested perhaps a surgical intervention. I mean by the sounds of it, you are more than desperate enough to try anything. I think your right, its unlikely that medication is the cause if nothing has changed for many years in the medicatio that you take. You say youve never had any issues with hearing loss so it doesnt seem that is a likely cause either. So that leaves a neurological or structural abnormality? Theres a paper i was reading "A diagnostic approach to tinnitus, and the various possible causes and treatments they discovered thru this approach. I think it could provide some answers and maybe a few ideas of where to? Paste this link into your browser https://www.aafp.org/afp/2004/0101/p120.html
And you wouldnt be the first person to accidentally use their real name. Dont worry about it. By the way, i am a female. Im 52yrs old and i live in New Zealand.
 
departing

departing

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Jul 5, 2019
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I was able to starve myself for a couple of weeks but thirsting myself proved nearly impossible. It's not a method I suggest. If you search, there are other posts about the trials and tribulations of starving/thirsting.
 
S

Susan Caswell

Veteran
Feb 25, 2019
196
350
can you help me in anyway

What does help look like to you? What could someone here directly do for you?

Can you answer the question directly, in just a few sentences, without a massive wall of text with no punctuation, and not veer off into tangents?
Yes I understand im so sorry I know no one can help me just keep hoping someone can suggest something to help get this down to copable and liveable at least I feel like an idiot going on and on but im terrified cant see how I can live with this and don't know how to go keep hoping I don't have to and this stops but after almost 3 years I don't think it can and if its all the meds im still on them its horrific living with this day after day I don't even know why I was so well don't get it I don't deserve this no one does if it was just like it was at the start id cope stand it I did for months but the hyperacusis I cant bare all made me so ill and I was so well the panic and anxiety is crippling so sorry to go on really sorry x
Hey Susan, i really feel for you. I cant imagine what it must be like to have that level of noise in your ears every second of every day and no let up. Youve obviously seen Drs over the years and i see youve tried various different treatments but it doesnt sound like anyone has ever fitted you with the specific hearing aids ive read about that they use for tinitus? You also ever mentioned whether your Drs had suggested perhaps a surgical intervention. I mean by the sounds of it, you are more than desperate enough to try anything. I think your right, its unlikely that medication is the cause if nothing has changed for many years in the medicatio that you take. You say youve never had any issues with hearing loss so it doesnt seem that is a likely cause either. So that leaves a neurological or structural abnormality? Theres a paper i was reading "A diagnostic approach to tinnitus, and the various possible causes and treatments they discovered thru this approach. I think it could provide some answers and maybe a few ideas of where to? Paste this link into your browser https://www.aafp.org/afp/2004/0101/p120.html
And you wouldnt be the first person to accidentally use their real name. Dont worry about it. By the way, i am a female. Im 52yrs old and i live in New Zealand.
Thank you for replying so kind. They have tried hearing aids and white noise generators couldnt manage due to the hyperacusis that's complicated this I could cope with the tinnitus I did for months I didn't hear it all day just had problem at night and sleeping pills worked for a long time.The hearing aids amplified the tinnitus all the sleeping pills and anxiety meds im sure caused the hyperacusis its horrific there no way I can live like this I never thought it could get any louder than start and its much worse day after day no quiet no peace it is pure torture. I was such a quiet calm soul loving life had wonderful life. Ive tried everything possible even therapies to calm me down its time to go I cant take this anymore I wish I could stand it wish it would just go down let me cope and live. Ive had 2 MRI Scans and CT Scan nothing coming up so no surgery to cure it if it was Pulsatile or narrowed Blood Vessels they could stent it but nothing is showing to fix even consultants baffled and never heard of anyone this extreme trust me how I wish it would stop its torment human beings need quiet and rest and happy I could scream and scream I had such plans even worse today the amplifying is horrific knocks me so very sick im so tired so sad so ill ive got to finish this its how I don't know what pills cant hang myself not strong enough ive tried to suffocate myself you cant can only keep thinking jump but what if I don't die and crippled and deafening tinnitus its the cruellest thing but forever this cant be my fate its not right xx
 
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