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For Tinnitus sufferers

woxihuanni

woxihuanni

Angelic
Joined
Aug 19, 2019
Messages
2,500
I've seen people here for whom tinnitus is a big reason for considering ctb, here is some news I stumbled on today:

 
F

Fedrea

Specialist
Joined
May 14, 2020
Messages
317
I've seen people here for whom tinnitus is a big reason for considering ctb, here is some news I stumbled on today:

That is the Neuromod trial. Check out the forum Tinnitus Talk for real life outcomes and even a scientific analysis of the real life outcomes experienced by forum users. Some better, some worse though.
 
woxihuanni

woxihuanni

Angelic
Joined
Aug 19, 2019
Messages
2,500
That is the Neuromod trial. Check out the forum Tinnitus Talk for real life outcomes and even a scientific analysis of the real life outcomes experienced by forum users. Some better, some worse though.
Thank you, I had no idea (saw this in today's news). It is not really for me as such, but people might be directed to the resource you mention.
 
schopenh

schopenh

Specialist
Joined
Oct 21, 2019
Messages
379
Devices like this usually show some sort of positive outcome in the one trial that the manufacturer allowed to be published (selective publishing). Then for sociopolitcal and economic reasons they end up being installed in every single patient with tinnitus; they invariably barely help most people and the doctors get mad at the patients for wanting them removed. This genuinely happens with basically all neuromodulation devices.


If you go to the very paper this article discuses (10.1126/scitranslmed.abb2830 - you can use scihubtw.tw to access it) and scroll down to the very bottom you will see the following:
Funding: This work was sponsored by Neuromod Devices (Dublin, Ireland).
Competing interests: B.C., C.H., S.H., E.M., C.O.C., S.L.L., S.D., and HHL are or were employees, consultants, and/or shareholders of Neuromod Devices. B.L., S.V., and D.A.H. serve on the clinical advisory board of Neuromod Devices and receive monetary compensation for their contribution.
 
F

Fedrea

Specialist
Joined
May 14, 2020
Messages
317
Devices like this usually show some sort of positive outcome in the one trial that the manufacturer allowed to be published (selective publishing). Then for sociopolitcal and economic reasons they end up being installed in every single patient with tinnitus; they invariably barely help most people and the doctors get mad at the patients for wanting them removed. This genuinely happens with basically all neuromodulation devices.


If you go to the very paper this article discuses (10.1126/scitranslmed.abb2830 - you can use scihubtw.tw to access it) and scroll down to the very bottom you will see the following:
Funding: This work was sponsored by Neuromod Devices (Dublin, Ireland).
Competing interests: B.C., C.H., S.H., E.M., C.O.C., S.L.L., S.D., and HHL are or were employees, consultants, and/or shareholders of Neuromod Devices. B.L., S.V., and D.A.H. serve on the clinical advisory board of Neuromod Devices and receive monetary compensation for their contribution.
Yeah and also they didn't have a control arm. They argued it wasn't possible to have a sham control treatment, but I think there's a similar trial going on in Minnesota and they're planning a control arm.
 
Chupacabra 44

Chupacabra 44

If boredom were a CTB method, I would be long gone
Joined
Sep 13, 2020
Messages
561
Please keep sharing, and thank you for taking the time to post. And, to others thanks for pointing out some study design issues.

I've had tinnitus for 20 years, and fortunately it's not as bad as Susan's, who we hear from on this forum. But, there are times when I think enough is enough and figuratively want to jam an ice pick down my ear canals.
 
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llerutem5

Member
Joined
Oct 8, 2020
Messages
24
Thank you everyone for the information, sorry it was not helpful news...
That was good intention very kind from you I know how hard tinnitus could make me push to the edge of wanting to stop existing it is often like a failure to deal with it. But I had most helpful humans who did much better than any doc or medical tool. I too read the publishing some years ago and it looked like a very smart technical solution but difficult to fit the particular needs of the very patient. Guess some might have found relief with the devices, if affordable.
 
GoneGoneGone

GoneGoneGone

Elementalist
Joined
Apr 1, 2020
Messages
755
Thank you @woxihuanni

I posted this in one of Sudan’s threads, maybe it is useful to someone here.

There are some earbuds from Flare Audio, called Calmer, which allegedly have had great results with tinnitus.
 
roju

roju

Member
Joined
Jul 2, 2020
Messages
26
It didn't work for me...

However, thank you @woxihuanni. You seem a kind soul.
 
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BridgeJumper1994

BridgeJumper1994

The Arsonist
Joined
Apr 7, 2019
Messages
874
I dont believe anything will fix it for me at this point
Also it involves seeing a doctor who would prescribe the treatment which I will not do because of my ptsd.
My friend tried this therapy and told me she had to take fucking mental illness score tests to determine whether her not being able to cope with tinnitus is because of mental illness, and she needed to lie on them in order to get approved.
And getting the electrostimulation device was so expensive she needed to dig into the fund her parents set up for education and stuff.
It did help a bit, but she still hears the ringing

Not to mention I was unable to even register on TinnitusTalk because they expected me to know....the names of all famous tinnitus researchers
So yeah.....
 
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GoneGoneGone

GoneGoneGone

Elementalist
Joined
Apr 1, 2020
Messages
755
Thank you @woxihuanni

I posted this in one of Sudan’s threads, maybe it is useful to someone here.

There are some earbuds from Flare Audio, called Calmer, which allegedly have had great results with tinnitus.
Susan’s threads. Can’t even spell anymore...
 
L

llerutem5

Member
Joined
Oct 8, 2020
Messages
24
And getting the electrostimulation device was so expensive she needed to dig into the fund her parents set up for education and stuff.
It did help a bit, but she still hears the ringing
Someone else found it helpful to self care with natural sounds.
A friend of mine took herself to a calm seaside with slow, peaceful tide and it was
overlaying the high pitched ringing through the crisply and tiny fresh sounds the waves would constantly make. Was probably the right frequency to serve her case I guess.
Anyhow, making it a digital sound to take at home did not work well, too complicated sadly.
 
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