Does anyone else struggle with health problems that doctors can't diagnose?

  • Thread starter Arvinneedstodie
  • Start date
  • Welcome to Sanctioned Suicide, a pro-choice forum for the discussion of mental illness, suicide, and the moral implications of the act itself. This is not a pro-suicide site. We do not encourage or aid suicide, and the information offered is for educational purposes only. Read our rules and FAQ for more information. We also offer a recovery subforum if you wish to get support.

    You can close this box by clicking the top right "X".

A

Arvinneedstodie

Member
Sep 18, 2018
84
257
My poor health is the biggest reason why i am suicidal. The only reason i am alive right now is because i hold on to the hope that the next doctor i meet will finally figure something out, and perhaps i can fight back against the monster that has destroyed my life. I am only 24, but already i feel like a sick old man. I have always been a frail kid, but my problems really started around the age of 15 or 16. My libido went away, i get all kinds of nasty skin infections, then my horrible stomach problems started, started having neck and shoulder pain, developed scoliosis, fatigued all the time, and it's like my physical development stopped. No. More like my body decided to give up. Ever since it began, my whole life went off the rails. I am now so depressed, anxious, and brain fogged that my mental health is probably just as bad as my physical health. Over the years i have been treated for depression and etc., and some doctors like to dismiss all my physical symptoms to my mental health. I am sure they are closely linked, but no amount of antidepressants can change the fact that my physical problems trumps everything else in life. So i have become a depressed social recluse, working dead end jobs making minimum wage trying to sustain myself, and every year i go on another round of seeing different doctors and trying to understand what is wrong with me.

What else should i even try at this point? Anyone else living this kind of life as well? If so, i am sorry.
 
k75

k75

L'appel du Vide
Jun 27, 2019
1,899
3,845
I do. I suffer from a lot of symptoms but nobody I've seen can figure out what the actual problem is. It's all connected and we know what started it, but it's a mystery what's actually wrong with me.

On paper, I'm pretty healthy. But for 5 years, I've suffered daily nausea and vomiting. I have to take prescription antiemetics several times a day. I suffer from attacks of gastroparesis and pancreatitis with no trigger. The pain never really goes away. Sometimes I have a constant headache that lasts for weeks straight. I see specialists who are baffled, and there just doesn't seem to be an answer. It's so frustrating.
 
Thebuddhacel

Thebuddhacel

the truecel buddhist
Jan 17, 2020
66
135
Well I have erectile dysfunction, I already spent 7k to solve this. They found nothing. The same applies to my hair.
 
  • Like
Reactions: Arvinneedstodie
luna666

luna666

IBS/Depression/Anxiety/Panic Attacks
Apr 24, 2019
50
131
After going to the doctor for so long they just threw the name "ibs" for me - that's what they use when they can't find a name for a Digestive system disease - and it's really one big reason of the rest that I have to ctb.
No one deserves to live in pain, having to be ashamed of it's own conditions, making up excuses to avoid certain situations due to the disease, being mocked about a thing they have no control of.
Health issues are awfully distressing and they can ruin everything.
 
TStorm

TStorm

Fading Light
Mar 18, 2020
33
100
I'm sorry. I'm in a similar situation. I've had migraines since I was in Elementary school. They are often so bad I have to just lie on the bathroom floor in the dark. No doctor has ever been able to say what the problem is. I went for several tests, and even a CAT scan. Nothing came up. I don't want to deal with this on top of everything else anymore.
 
disabledandhopeless

disabledandhopeless

Wise
Mar 2, 2020
225
482
They do not know what’s the actual problem behind my disabilities either. If they can’t figure you out they tend to diagnose you as “mentally ill” since it’s easier that way.
 
Last edited:
Fragile

Fragile

Broken
Jul 7, 2019
614
1,941
your experience is very similar to mine. i'm so sorry that you are dealing with this, in a way i know how you feel. specially with doctors that dismiss you and blame it on your mental health, they just make everything worse. i also suffer from mental health issues so that's the go to excuse when they don't want to bother with treating my health.

i have IBS, chronic gastritis, gallbladder tumors, chronic fatigue, scoliosis, bad respiratory issues, fibromyalgia, allergies, and those are only the ones that i've been actually diagnosed with by a medical professional. some doctors think that i may even have multiple sclerosis but i suspect that the root cause is some genetic issue.

i've been trying to get a good doctor for a long time now, and at this point i just don't have any hope of ever getting a formal diagnosis of whatever i have, things just keep getting worse and worse and this world crisis is not helping at all, just when i finally get an appointment with a geneticist so i can get some answers the world crumbles and it gets canceled.

your symptoms sound like a textbook case of a conjunctive tissue disorder, have you looked into ehlers danlos syndrome or similar conditions? they usually go undetected until you get in your 20's and your health crashes.

the issue is that it's extremely hard to get a doctor with knowledge about it, some people take 20 years to find a doctor that can diagnose them with it, and the treatment is only supportive so even the ones who know what these kind of conditions are usually refuse to formally diagnose with excuses like "there's nothing you can do about it".
 
faust

faust

lost among the stars
Jan 26, 2020
2,979
4,555
My poor health is the biggest reason why i am suicidal. The only reason i am alive right now is because i hold on to the hope that the next doctor i meet will finally figure something out, and perhaps i can fight back against the monster that has destroyed my life. I am only 24, but already i feel like a sick old man. I have always been a frail kid, but my problems really started around the age of 15 or 16. My libido went away, i get all kinds of nasty skin infections, then my horrible stomach problems started, started having neck and shoulder pain, developed scoliosis, fatigued all the time, and it's like my physical development stopped. No. More like my body decided to give up. Ever since it began, my whole life went off the rails. I am now so depressed, anxious, and brain fogged that my mental health is probably just as bad as my physical health. Over the years i have been treated for depression and etc., and some doctors like to dismiss all my physical symptoms to my mental health. I am sure they are closely linked, but no amount of antidepressants can change the fact that my physical problems trumps everything else in life. So i have become a depressed social recluse, working dead end jobs making minimum wage trying to sustain myself, and every year i go on another round of seeing different doctors and trying to understand what is wrong with me.

What else should i even try at this point? Anyone else living this kind of life as well? If so, i am sorry.
I had it several times.
First case was when I was running very low. And diagnosis was something considering bad blood. I had high levels of hemoglobin but not enough oxygen saturated. Don't remember how it is called. But definitely that was not the reason.
Then nobody could figure out what was the reason why I was presented to emergency department. Only on day 3 I got medication against akathisia and dystonia after being discharged and waiting long queues.
 
  • Hug
Reactions: luna666
S

shevawc

Member
Mar 26, 2020
21
39
I too have stomach and enteric problems that nobody can diagnose. I have done gastroscopies and colonoscopies and everything look normal. Yet I still hurt almost every day when I eat something.
 
Soul

Soul

gate gate paragate parasamgate bodhi svaha
Apr 12, 2019
3,610
7,520
I've been struggling with "some souls just have that" for a few decades now. It's weary-making at best.
 
  • Like
Reactions: Arvinneedstodie
Underscore

Underscore

Moebius Potato
Jul 31, 2018
3,870
7,610
Very much so. I know my story. Depression as a child plus OCD anxiety led to a life of alcoholism in order to cope. That mixed with SSRI over use in order to try and stop drinking, left my body wrecked at 47. Metabolism ruined. Peeing constantly, day and night. Bowel ceased to function without excessive medication. All test so far come back negative

And so begins a fresh round of depression and anxiety at not being listened to whilst the symptoms rage out of control.

Doctors have spent four years of not listening and gas-lighting my story to fit their own over-simplification of things, so that they can give me a label and prescribe medications. Sod whether that label is accurate or not. And so one receives a mental health diagnosis, over and above any physical diagnosis.

They treat symptoms, not what's causing them.
They don't treat the individual.
They don't take co-morbidities into account when treating symptoms.
They label anything they can't understand as 'a mental health issue.'
They then discriminate against individuals who are so 'diagnosed' and marginalise the health issues that brought them there in the first place, creating the very depressive conditions that they claim to want to treat.
They prescribe anti-depressants as a panacea for anything they can't understand, creating dependence and compliance and then, paradoxically, want the patient to have the determination and motivation to fend for themselves, even though they have removed that very drive with over prescription.

Since I've been out from under the influence of the doctors, I've been attempting to listen to what my body needs in order to better manage my ailments. I've also been attempting to listen to my own inner voice more and be honest with my thoughts and feelings. My body and mind are both trying to find an equilibrium that the doctors would have drastically upset.

But I do still need medical help, diagnosis and treatment. If I ever get back to them, I need to be in control of my treatment, without upsetting their authority. Not allow the continual gas-lighting and non-joined up thinking that so many of them suffer from. That's not an easy path to walk when you are unwell and with the current climate it's even more distant.
 
Alain

Alain

Veteran
Mar 11, 2020
100
140
Headaches. Almost every day since I'm 14 (I'm now 36). Most of the time it's just like when you have a flu, discomforting, medium pain, keeps you in bed for a day. Sometimes, maybe once or twice a month, it's like having razor blades having a pogo party in your brain. It's so painful I faint after few minutes every time it happens.
The first time it happened, my dad took me to the hospital after I throw up because of the pain. I fainted walking out the car in front of the hospital. After about one hour in the hospital where they gave me morphine I felt really better, but the doc said to my father I was faking the pain. I was pissed of, so was my father who saw me throwing up and fainting.

Since, I had treatments (a shitload of different ones) but none of them helped me at all. My neurologist tried a lot of modern medicine for about three years and told me to try some non-scientific medicine too. I tried acupuncture and other stuffs like that, but nothing seems to work.
Actually, I suspect those headaches to be the starting point of my "Yeah I don't really enjoy living" situation.

I know there is worst than that for a lot of ill people. I can deal with my headaches because most of the time the pain is tolerable. But it's definitely not a nice way to live. When I'm at work I take a lot of cafeine and ibuprofene or paracetamol, it helps me (a little) to go through the day. But if I'm home, I stay in a very quiet room in the dark for two or three days with a bottle of water next to me, so the pain won't grow.
 
k75

k75

L'appel du Vide
Jun 27, 2019
1,899
3,845
Headaches. Almost every day since I'm 14 (I'm now 36). Most of the time it's just like when you have a flu, discomforting, medium pain, keeps you in bed for a day. Sometimes, maybe once or twice a month, it's like having razor blades having a pogo party in your brain. It's so painful I faint after few minutes every time it happens.
The first time it happened, my dad took me to the hospital after I throw up because of the pain. I fainted walking out the car in front of the hospital. After about one hour in the hospital where they gave me morphine I felt really better, but the doc said to my father I was faking the pain. I was pissed of, so was my father who saw me throwing up and fainting.

Since, I had treatments (a shitload of different ones) but none of them helped me at all. My neurologist tried a lot of modern medicine for about three years and told me to try some non-scientific medicine too. I tried acupuncture and other stuffs like that, but nothing seems to work.
Actually, I suspect those headaches to be the starting point of my "Yeah I don't really enjoy living" situation.

I know there is worst than that for a lot of ill people. I can deal with my headaches because most of the time the pain is tolerable. But it's definitely not a nice way to live. When I'm at work I take a lot of cafeine and ibuprofene or paracetamol, it helps me (a little) to go through the day. But if I'm home, I stay in a very quiet room in the dark for two or three days with a bottle of water next to me, so the pain won't grow.
I'm so sorry you have to live with that. I think to people who have never experienced a bad one, it sounds like such a mild thing, but it can drastically affect your life. Such hell!

Until this year, I almost never got headaches, and when I did they usually were from something like mild dehydration or stress and went away quickly. But on January 1st, I woke up around 2am with something close to a migraine. It never went away for a minute for 2 months! I'd also throw up because of the pain, but it was hard to convince anyone because I normally have vomiting issues.

I kept going to the emergency room, which made me feel stupid because... headache. And I could tell most people were mentally rolling their eyes at me. But I was worried about tumors or aneurysms or strokes. My grandmother died painfully of a brain bleed, so I'm terrified of that.

I had CT scans and all sorts of tests. Everything was normal. They gave me some kind of migraine meds with caffeine that dulled it, but it still didn't go away. I couldn't get anyone to understand I wasn't having headaches. It was just one big, long, continuous 24/7 headache. But every doctor was like, "So how often do these headaches occur? What makes them go away?" So fucking frustrating.

I got referred to a neurologist, but they were booked solid until mid-April. And now because of coronavirus shit, they cancelled my appointment until further notice.

Luckily, it just suddenly stopped one day, but I keep having headaches every few days now. They are similar to how I hear people describe migraines, but I don't think that's what it is.
 
A

Antibody246

Member
Mar 26, 2020
55
54
yes i suffer from insomnia, nocturia, underweight, hemorrhoids, overreactive bladder and so on..
 
  • Hug
Reactions: selfhater
BridgeJumper1994

BridgeJumper1994

Wizard
Apr 7, 2019
667
941
Not really undiagnosed because Im unable to see a doctor during the lockdown.
But I have severe and disabling ear pain and noise sensitivity that forces me to just stay in my room with ear plugs in all day and cry.
Whenever I try to bring up my ear pain everyone acts like they didnt hear anything
At least when I told them I was suicidal they acted
This is half life, its such a torture, screaming in pain from hearing my dad flush the water in our toilet or drop a spoon on the ground
 
Quarky00

Quarky00

Illuminated
Dec 17, 2019
1,874
4,225
Yeah, GI issues, sounds like severe IBS or mild IBD w/ vomiting malnutrition and underweight (share some symptoms with k75 but mostly milder)

Appointments for specialists are 2 months wait , and so are US , CT , etc , and each test requires new blood/urine test. Specialists in particular don't care much, don't write full symptom list, and don't recall it.

Docs didn't even give me basic medication to ease symptoms. For 3 years I've been hearing "let's wait for test results". I gave up and told them which Rx to prescribe. Shows what careless idiots they are. My GP knows me and I'm prescribing myself whatever is needed (inc SSRI, NDRI, etc). It's unbelievable...

I feel total disrespect for doctors, no contempt or resentment, but I consider common garden slugs more helpful.
 
Last edited:
selfhater

selfhater

Veteran
Mar 1, 2020
193
771
i have fatigue, stomach and genital area problems, idk if there is others, i can’t go to doctors so i’m freaking out about it if i have something serious
 
T

toomuchtimetodie

"to be overly conscious is a sickness"
Mar 13, 2020
261
304
I'm a little older than you... 28. I've known something was wrong with me since I was a teenager. I have had anxiety and depression my whole life but my physical health is complex. I've been fobbed off, misdiagnosed and even lied to about something that majorly impacted my life my a GP.
My blood work is haywire yet it seems the doctors can't be bothered investigating because my health issues whatever they are are so complex. I've yet to meet a compassionate doctor. I was just in the middle of further tests when all this covid lark started, so now all those tests are down the shitter.
Im struggling to ctb because I'm angry how I've been treated and I can't let go of that anger. I even paid for several private blood tests because the doctors weren't helping and I've made it simpler for them as they have all the bloods I've done off my own back as well as the ones they've actually done. It looks like I have a pituitary issue(tumor or abnormality) or Addison's disease, thyroid disease, I should be on treatment for but have been medically neglected.
And now theres no chance I will get sorted because even when this covid has blown over people will still be crying about it because they have a cold so the systems overflowing. And those people shout louder than me because I try to get on with it. That was my problem I didn't want to cause hassle so didn't keep pestering until they sorted me out. Now they have left me bitter, miserable, hateful. Which was never me.
Fuck this society, existence in general. It's an evil game. Hardly anyone has empathy and my years of being a nice person caused me nothing but more suffering.
Good luck to you.
 
braketimez

braketimez

Wise
Mar 15, 2020
200
281
My poor health is the biggest reason why i am suicidal. The only reason i am alive right now is because i hold on to the hope that the next doctor i meet will finally figure something out, and perhaps i can fight back against the monster that has destroyed my life. I am only 24, but already i feel like a sick old man. I have always been a frail kid, but my problems really started around the age of 15 or 16. My libido went away, i get all kinds of nasty skin infections, then my horrible stomach problems started, started having neck and shoulder pain, developed scoliosis, fatigued all the time, and it's like my physical development stopped. No. More like my body decided to give up. Ever since it began, my whole life went off the rails. I am now so depressed, anxious, and brain fogged that my mental health is probably just as bad as my physical health. Over the years i have been treated for depression and etc., and some doctors like to dismiss all my physical symptoms to my mental health. I am sure they are closely linked, but no amount of antidepressants can change the fact that my physical problems trumps everything else in life. So i have become a depressed social recluse, working dead end jobs making minimum wage trying to sustain myself, and every year i go on another round of seeing different doctors and trying to understand what is wrong with me.

What else should i even try at this point? Anyone else living this kind of life as well? If so, i am sorry.
Honestly, I'm not a doc..but I've done a lot of research on this shit, and my guess would be:
It sounds like extreme systemic inflammation, caused in part by gut/digestive issues. Most doctors don't know how to address gut problems.
The mental health and physical health are most likely two in one. Have you tried eliminating foods from your diet and testing them one-by-one?


Regardless, I'm sorry things have come this far. It fucking sucks how the body can fall apart the way it does. I'm experiencing something similar. It's gradual, but definitely getting worse by the day.
 
  • Like
Reactions: Arvinneedstodie
T

toomuchtimetodie

"to be overly conscious is a sickness"
Mar 13, 2020
261
304
What enrages me is in my autopsy they will quite easily see my ailments
And the cost of cleaning up my suicide to the system will be much higher than it would've been to treat me.
Beyond a cruel joke.
 
Chronicillness

Chronicillness

Veteran
Jun 19, 2018
116
252
Very much so. I know my story. Depression as a child plus OCD anxiety led to a life of alcoholism in order to cope. That mixed with SSRI over use in order to try and stop drinking, left my body wrecked at 47. Metabolism ruined. Peeing constantly, day and night. Bowel ceased to function without excessive medication. All test so far come back negative

And so begins a fresh round of depression and anxiety at not being listened to whilst the symptoms rage out of control.

Doctors have spent four years of not listening and gas-lighting my story to fit their own over-simplification of things, so that they can give me a label and prescribe medications. Sod whether that label is accurate or not. And so one receives a mental health diagnosis, over and above any physical diagnosis.

They treat symptoms, not what's causing them.
They don't treat the individual.
They don't take co-morbidities into account when treating symptoms.
They label anything they can't understand as 'a mental health issue.'
They then discriminate against individuals who are so 'diagnosed' and marginalise the health issues that brought them there in the first place, creating the very depressive conditions that they claim to want to treat.
They prescribe anti-depressants as a panacea for anything they can't understand, creating dependence and compliance and then, paradoxically, want the patient to have the determination and motivation to fend for themselves, even though they have removed that very drive with over prescription.

Since I've been out from under the influence of the doctors, I've been attempting to listen to what my body needs in order to better manage my ailments. I've also been attempting to listen to my own inner voice more and be honest with my thoughts and feelings. My body and mind are both trying to find an equilibrium that the doctors would have drastically upset.

But I do still need medical help, diagnosis and treatment. If I ever get back to them, I need to be in control of my treatment, without upsetting their authority. Not allow the continual gas-lighting and non-joined up thinking that so many of them suffer from. That's not an easy path to walk when you are unwell and with the current climate it's even more distant.

The irony here is that, "mental health awareness" is making it easy for doctors to accuse you of malingering or immediately diagnose you with depression/anxiety and reroute you back to a psychiatrist. This has been my experience, even despite a long list of confirmed diagnoses that have imaging and blood tests to corroborate them. I feel as I have been gang-raped by the doctors who have harmed me. I am bedridden all for except 30mins per day because of butchered and unecessary medical interventions.


It's almost as if most doctors today are nihlistic psychopaths who factor your complete insignificance into 8 billion other people and realize you're not worth the extra time to run some detective work and try and figure you out―so they instead prescribe a gambit of psychotropic meds that only mask symptoms temporarily while damaging your body behind the scenes.
 
muchomango

muchomango

New Member
Mar 31, 2020
3
5
It makes me sad to see how many people struggle with unknown disabilities or just simply can't go to a doctor. I'm also with you all. I was diagnosed with juvenile fibromyalgia (I was 17 when diagnosed but was hurting WAY before), which, if you know anything about fibro, it basically means they don't know why I'm hurting. It seems that a lot of you have the same situation-- hurting but unsure why.
Another shitty part to all of this is the bills. Tests upon tests just to be told they don't know what's wrong and then my family has to fork over thousands. Fuck the system honestly.
 
A

AintNoWayOut

Member
Jan 6, 2020
75
168
shit man, i relate all too well. i've been dealing with severe neck and back issues since 16, and its fucked my life up and is the main reason im suicidal as well. life just isnt anything like what it used to be... every moment is a struggle because im constantly in pain and discomfort. as you put it, i feel like an old man, if not worse. for me, i have a good idea of what caused it... and its something really stupid which shouldnt have led to something this severe and likely permanent. i've been to all types of doctors, and they've been unable to help. they did an MRI and basically concluded that the curvature in my spine is a bit messed up and i have "chronic muscle spasms", but idk if i've been officially diagnosed with anything. but even if i have, they havent been able to actually help me. so at this point i just dont have it in me to keep trying and having my hopes crushed, which is why im here. shit really sucks and i feel you man.
 
orangepotato

orangepotato

Member
Mar 26, 2020
15
29
Yup. I've been issues with energy my whole life. Of course everyone just accuses me of being lazy because it's easier for them to just blame me for being lazy than accept that some people just get a shit hand in life. Fuck them. Fucking assholes. Fuck the doctors who assume I'm faking too.
 
P

PainfulGut

Member
Mar 1, 2020
19
27
Yep. My username is my ailment, I have 'IBS' which is doctor's terms for 'you have these symptoms, we don't know the cause, we don't know the cure, and we don't really want to do tests because it's SO COMMON that we assume you'll just live with it like everyone else :)'

I'm only 23. My childhood and teens was constant stress and depression because of my horrible home life, and things were only just starting to become normal when I get hit with this. I feel like I'll never have the chance to be young and healthy. My entire life; plagued by misery. While I watch my friends live and thrive and never have to worry about chronic illness, or the fact they'll never be in good health again. What a sick joke.
 
Darkmoon Queen

Darkmoon Queen

Member
Apr 1, 2020
37
63
I have a diagnosis but nothing to mitigate what happens. The long and short of it is that I had hypothyroidism undiagnosed and untreated for so long that I've apparently sustained nerve damage. Meaning I now jump at every little thing and even minor annoyances make my skin burn for hours and make me dizzy even after the annoyance/stressor has long been resolved. I also have panic attacks that make me believe I am dying and, ironically, it scares the bejeezus out of me.

It's nothing compared to what most of you suffer but it's enough to add to my overall misery. :/
 
A

Arvinneedstodie

Member
Sep 18, 2018
84
257
your experience is very similar to mine. i'm so sorry that you are dealing with this, in a way i know how you feel. specially with doctors that dismiss you and blame it on your mental health, they just make everything worse. i also suffer from mental health issues so that's the go to excuse when they don't want to bother with treating my health.

i have IBS, chronic gastritis, gallbladder tumors, chronic fatigue, scoliosis, bad respiratory issues, fibromyalgia, allergies, and those are only the ones that i've been actually diagnosed with by a medical professional. some doctors think that i may even have multiple sclerosis but i suspect that the root cause is some genetic issue.

i've been trying to get a good doctor for a long time now, and at this point i just don't have any hope of ever getting a formal diagnosis of whatever i have, things just keep getting worse and worse and this world crisis is not helping at all, just when i finally get an appointment with a geneticist so i can get some answers the world crumbles and it gets canceled.

your symptoms sound like a textbook case of a conjunctive tissue disorder, have you looked into ehlers danlos syndrome or similar conditions? they usually go undetected until you get in your 20's and your health crashes.

the issue is that it's extremely hard to get a doctor with knowledge about it, some people take 20 years to find a doctor that can diagnose them with it, and the treatment is only supportive so even the ones who know what these kind of conditions are usually refuse to formally diagnose with excuses like "there's nothing you can do about it".
I looked up the disorders you mention, i don't think i have those. At least, i don't think my skin problems are that bad. I have always focused more on thyroid, hormone imbalance or autoimmune problems as the base issues for me, but every test comes back "normal" except for a lowish testosterone which is expected. I always knew at the back of my head that my problems are probably genetic, and i will probably spend the rest of my life trying to figure it out while my health continues to deteriorate.

Like you, the current corona virus thing has wrecked all my efforts and plans. The whole healthcare system here in NYC is shut down. The only things available to me are urgent care and very basic family practitioners who can only treat colds and do basic blood tests. I don't know what to do anymore. I was coming up with a plan with my therapist, but haven't heard from her or the mental health place in weeks. I think this is it. I am stuck here deteriorating in every way. This is the definition of living hell.
I too have stomach and enteric problems that nobody can diagnose. I have done gastroscopies and colonoscopies and everything look normal. Yet I still hurt almost every day when I eat something.
Yeah, i have done every kinds of tests over the years for my stomach issues. They have insert tubes down my throat, up my as, and everything else in between. Nothing. They just do it to milk my insurance money. I knew the test would come back normal, they knew whatever i have is beyond their ability, and they don't even try to help me. I have seen 2 different GIs last year, and both try to get rid of me as soon as possible. I have never caused trouble, or anything, i was genuinely trying to get help, but i guess they saw my medical record and it spelled "trouble". Makes me mad to just think about it.
Very much so. I know my story. Depression as a child plus OCD anxiety led to a life of alcoholism in order to cope. That mixed with SSRI over use in order to try and stop drinking, left my body wrecked at 47. Metabolism ruined. Peeing constantly, day and night. Bowel ceased to function without excessive medication. All test so far come back negative

And so begins a fresh round of depression and anxiety at not being listened to whilst the symptoms rage out of control.

Doctors have spent four years of not listening and gas-lighting my story to fit their own over-simplification of things, so that they can give me a label and prescribe medications. Sod whether that label is accurate or not. And so one receives a mental health diagnosis, over and above any physical diagnosis.

They treat symptoms, not what's causing them.
They don't treat the individual.
They don't take co-morbidities into account when treating symptoms.
They label anything they can't understand as 'a mental health issue.'
They then discriminate against individuals who are so 'diagnosed' and marginalise the health issues that brought them there in the first place, creating the very depressive conditions that they claim to want to treat.
They prescribe anti-depressants as a panacea for anything they can't understand, creating dependence and compliance and then, paradoxically, want the patient to have the determination and motivation to fend for themselves, even though they have removed that very drive with over prescription.

Since I've been out from under the influence of the doctors, I've been attempting to listen to what my body needs in order to better manage my ailments. I've also been attempting to listen to my own inner voice more and be honest with my thoughts and feelings. My body and mind are both trying to find an equilibrium that the doctors would have drastically upset.

But I do still need medical help, diagnosis and treatment. If I ever get back to them, I need to be in control of my treatment, without upsetting their authority. Not allow the continual gas-lighting and non-joined up thinking that so many of them suffer from. That's not an easy path to walk when you are unwell and with the current climate it's even more distant.
Wow, you summed it up perfectly. The points you made on the doctors are exactly my experiences as well. I am so sorry you have to go through that as well. I agree with what you said about taking control, not letting doctors gas lighting, but work with them, to basically find some balance the doctor and patient. I understand that doctors have a frame that they operate in, and some people who are outside of that frame can be difficult for them, and i have always tried to be understanding, but each and every trial that i go through, i get wrecked with hopelessness. What kind of sickness do i have?! What am i supposed to do?! Where are the right doctors that actually want to help me instead of labeling me "trouble" and try to get rid of me right away. I don't understand this. How am i supposed to function, get through the daily grind, face random challenges, combat through depression and anxiety while doctors, the people who are supposed to help me, make me feel hopeless. Is there anything more maddening?
 
Last edited: